Cracking the Cancer Code
In an age where data are everywhere, harnessing the power of data science can be a catalyst for groundbreaking discoveries in the fight against cancer. Welcome to the Cracking the Cancer Code podcast where we explore the latest in cancer data science. As a part of the ITCR Training Network (itcrtraining.org), we’re a small team of individuals who are working to democratize data science education in the hopes of catalyzing cancer research and ultimately fighting health inequities in cancer.
The ITCR Training Network (and this podcast) is supported by NCI UE5CA254170 but the views expressed on this podcast are those of the individuals who expressed them and do not reflect the views of our funders.
Find out more about the ITCR Training Network at https://www.itcrtraining.org/
Cracking the Cancer Code
You can follow the rules but still be unethical
In this episode of Cracking the Cancer Code, we discuss critical role of ethics in cancer research data management. Dr. Jody Platt discusses with us how researchers navigate patient consent, data sharing, and privacy protection in an era of rapidly evolving technology. The episode highlights the importance of transparent communication, cultural competency, and the emerging concept of data sovereignty in building ethical research practices.
Note: There are laws to prevent discrimination based on genetic risk by employers and insurance companies, however advances in technology have created emerging potential concerns. See this article https://www.annualreviews.org/content/journals/10.1146/annurev-genom-111119-011436 for more information on the nuances involved.
